im terrible blogger

sorry this took me so long to write, i've been neglecting this blog oops!
well after 3 months of wearing hearing aid my hearing deterotiate to the point that the sounds come in as vibrationn no sound at all so its offically dead now hah oh well, more reason to get CI in that ear damn it doctor (he wouldnt implant me for dumb reasons)
also I've heard about new nucleus 5 system, at first i hated it and send me into semi-panic mode that i might not be able to get implant for another 5-10 years until next generation after nucleus 5 comes out hopefully better designs, that or beg harder to my surgeon to implant me now this year while freedoms are still used UGH!! but after while i warmed up tiniest bit to the processor itself but still abhor the implant designs itself, come on square metal housing? the top edges causes slight discomfort for me already (its already being successfully treated with nortriptyline meds) now with 4 sharp angles edges, just what i need, more discomfort? why cant they make it tapered from center to edges or make it round? idiot manufracturer, so i dont know what to do just hope the clinical trial goes badly that they change the housing design or comes out with next generation less than 3-5 years or my doctor gives in and implant me right away damn it im back into semi-panic modes so see ya later

Post-Hearing Aid My Thought

So now after fairly sucessful trial with hearing aid I had moderately bit of dizziness woosh sensation in my head at the beginning but it goes away after long while so right now at this moment only FEW sounds trigger that but 80% other sounds that I can get with my residual hearing is fine no problem at all. 

Also one symptoms I dont think I've mentioned before, is achy around implant site sometimes it'll spread down to part of neck and little bit to the back of the head (only implanted side of the neck so left side) but its lways random and goes away after I wake up (18-24 hours)  then its gone and come back whenever without warning I think the reason is that surgeon might've not made it flush to the skull well enough for some reason maybe thin skull or oversensitivity skin/muscles around implant since I have thin skin could be anything,

 Also since I'm migraine sufferer it could be from that. Im trying out few medications to see what relieves migraine and hopefully fix the achy problem. 

I consider it mild most of time and sometimes moderate but never horrible or affect my mood/day. 

So I'm having 2nd thought about getting other ear implanted since I'm worried if I'll get same achy thing and also I dont want to go back disliking the music again because my fiance's all about music so it's not fun when he enjoy the music when I hated it with CI (but hearing aid bring in more bass sounds so now im back enjoying music as long its not too loud)

So we'll see maybe 5-15 years I'll change my mind again who know maybe there'll be longer array to get WHOLE cochlea to get ALL frequencies then I'll get it in a heartbeat (if surgeon will even implant it) but right now I'll wait

Hearing Aid Update

heres the update 

Pro:

* Heavy metal/Rock music sound much better

* More volume control to turn down if too loud (CI volume only lower by 10% difference pfft)

* Hearing more of the low frequency that im missing with CI

* If im tired of loud noise like restaurant, have headache or just want a quiet day but still have some sound I can just take off CI and wear just hearing aid.

* No surgery

* Comfortable , no pain like I have around implant site I get random achy feeling.

* Get some sound input in other ear so no one-sided feeling.  

Con:

* Cant hear the speech sounds clearly, its very muffled and missing sounds

* Not loud enough to match up volume-wise with CI when I want it to

* Feedback! (if I lean my head too close to something like arm of the couch it'll feedback)

* Earmold (plugged up feeling)

* Not covered by insurance (but VR may pay for it so we will see in little while)

* Some sounds sound very weird like light classical music sound like soft feedback ew 

* Increases the tinnitus issues but it doesnt bother me at all (only time it will bother me is if I cry my implanted ear will start ringing loud screaming horrible buzzing if I dont have processor on)

* At the most of time it doesnt work together like it will be CI hearing sounds then switch to hearing aid hearing sounds when different frequencies sounds is occuring all at once, it feel like someone is holding speaker to my ci ear then suddenly move it to my other ear its weird.

Bringing it back from the dead

Ok I'm sure you guys are puzzled by the title of the blog, I'm thinking about bringing back something we all thought it was over and buried.......
Hearing aid!
Well since I know surgeon won't implant my right ear until I speak well so I figured until then I should try hearing aid again since my CI's louder than hearing aid it might equalize the sound input so it don't feel whooshy and feel unbalanced.
I emailed audiologist about it but haven't received an reply yet. I will let you guys know what she said later.
I just want sound coming in right ear, I'm not too worried about speech clarity for right ear since I'm getting it from left.
We will see how that turn out.
Also I found info about recruitment it said good audiologist can work around it like theu does for CI and sensitive spot they turn off or lower one electrode. Same idea with hearing aid and recruitment spot. I should ask about that also I know low frequency make the issue with hearing aid worse and I looked up at oticon sumo dm the one I trial with before CI it said it put all the power toward low frequency (No wonder!) so I can ask to turn it into normal sound amplification or try different one.
Of course I will update on how it goes.
Wish me luck!

Sorry! Wayyyyy overdue update!

Hey everybody!
I'm so sorry for neglecting this blog! I had no idea what to say on here!
Umm what's new with me you might ask?
Well not much really, except I've decided I want to go bilateral for sure but when I asked surgeon about it and he came in room talking to me and I'm like "uhh write it down or slow down please" and he said "oh you don't understand me still?" I'm like "I do understand you but I can't reply by speaking" and he's like "oh you cant talk either?" what? Did he expect that the CI will miraclously restored my ability to listen and speak like hearing person? But anyways he said he want to order AVT therapy and he'll look for therapist that signs and that was 6 months ago! Still haven't heard anything from him ever since.
He said once I can listen and understand spoken language (I think I've came far enough? I can understand like 70-80% of what's being said if I know the subject if its only one person talking at a time toward me so I get extra help with lipreading.) And have ability to speak well (uhh? I think that's too much to ask for) then he will implant my other ear.
And he's saying things like I already got 80% of hearing with 1 implant (I disagree I feel like its 60% and its super annoying having one sided hearing and moving my head to hear something better and louder) and also new thing happened my nonimplanted ear ringing starting to get worse that sometime its so loud that its louder than my hearing with CI on in quiet evironment (only hear ac, water filter from aquarium, clock ticking tv volume on low etc) and if I lean my head against backside of lounge chair sound sounds muffled and quiet and if I sit on couch with my nonimplanted ear facing where tv is I will have hard time hearing tv clearly its frustrating and if I try to turn sensitivity up higher than 5 it'll hurt its too sensitive right now I think its because of my flu I'm having right now so I havent wore it for 2 weeks now and nobody respect my wish to talk little quieter or turn music down so I pop the coil off and in noisy evironment its too loud and I'm barely just starting to pick out few sounds from people at my table talking out of background noise so I rely heavily on lipreading which I sucked at it to start with..... I WANT MY BEAM PROGRAM BACK lol I miss it so much I totally regretted having it removed from my processor (brain fart that day perhaps?)
So I think it will really benefit me having other ear implanted since my nonimplanted ear's my better and most used ear growing up (dominant) it still is I get strong urges of wanting hear out of right side and it been almost a year now!
Plus I want to get rid of my residual hearing to get complete silent no loud screaming ringing in my ear lol.
And hearing in full surround sound not having to turn my head around to get better hearing UGH pain in the a........ butt (younger audience might be looking into this lol)
What do you suggest me to do? Because if he keep this expectation I'll never go bilateral. My mouth just don't cooperate with my brain maybe permament case of adult apraxia? Lol anyways
Also my bubblehead audiologist want me to learn to listen to multiple people talking at once (group setting) since I mastered at listening to one person speaking at a time while knowing the subject lol
Can hearing people even do that?
NO
Dumb!
Way too high of a expectation huh?