ok heres what happened, i came in and surgeon and his assisstant brian came in with case of cochlear implant nucleus freedom to show me and let me try it on its HUGE but not that crazy heavy though it just so overwhelming my ear so i told him i want mini bte so he brought out order form and told me i get 2 speech processor so I told him i want my regular bte in pink and the other one is mini bte which i plan on wearing most of time it will be top part pink and bottom part i get 12 different colors! im excited! OH almost forgot, my coil will be brown so it blend in my hair better.
he told me he doubt that hearing aidwill benefit me enough at this level of deafness he told me he will be surprised if it actually does so he went ahead ordering it and sent it to company and told me his assisstant tina isnt in today so have to call her later i think monday she should be in by then to schedule the surgery and i STILL have to do hearing test anyways just to prove my insurance that its medically necessary blah blah blah so whenever I call i will KNOW my surgery date!!!! Im so excited and of course i NEED to not get too excited because what if they cant schedule it before my school start? and also what if Jody the audiologist will actually be reasonable like if i scored under 40% in speech reception test then i get it not on level of loudness i heard you know?
But the most important of them all is i have very very very good chance of being perfect canditate!
i will update blog as soon as i know the date and another post on how my hearing test went and if i get it or not!!!!!
Friday, September 21, 2007
Friday, September 14, 2007
decision on candidacy delayed
sorry everyone I've been busy and forgot to add update about what happened with my appointment that supposed to be final one to determine my candidacy but didnt work out. I copied info from www.alldeaf.com on what i said on here so i didnt leave anything out except some people response after first post only on last post. so here it is
*Well I didn't get confirmation today because she used quick mold as temporary mold for hearing test with best aided condition but as soon she pulled mold out she was like *gasp* your ear canal is so small, hope I can fit tube through this. So she tried and it ripped it completely so she had to redo and put in box to mail to company so that mean I have to wait EVEN longer before getting her decision ugh also she seem airheaded (meaning dumb) and she is pretty pushy about not getting ci and use oticon instead I'm like "no I'm not interested I want ci so focus on that please and just do hearing test as soon as we get mold to see if I am candidate ok?" so that's it for while but she told me to go ahead schedule for surgery and if she decided to say no after we get hearing test then she'll cancel the surgery and if she said yes it'll happen so I don't know, we'll see I'm little worried if she gonna rip me off like if I heard tiny blip and she decided to go for hearing aid instead of ci you know what I mean? Hm just really hope I get it cuz I don't want hear horrible distorted sound and loud static buzzing noise *sigh*
* She is audiologist that work with my surgeon and she's only one so if I want go other audiologist I'll have to go one in baltimore, maryland that's like 3 hours from my house and my surgeon I have right now is only 15 min away. She want to do test on my good ear but I want get ci on my worse ear she doesn't want do test on that ear I don't see the point of that can't I just get hearing aid on good ear and get ci on other one sheesh
* she have my audiogram from 5 months ago by other audiologist who offer me ci when we found out I lost at least 45 decibel of hearing (you know how its different in each frequency so 45 is minimum) so she used that to program oticon and my hearing in good ear is profound plus I want ci on my worse ear (110 decibel loss) and she didn't want to test that one it doesn't makes sensesOk I emailed my surgeon's assisstant about it she told me its ok to do that because she will call and talk to my insurance company for approval right after she pick date and if they didn't approve before the surgery date just delay it and also my hearing test depends on my surgery too so guess its ok as long they get what is needed before surgery happens and she also will forward my email about why hearing aid on only right side not both so we'll see what they said. I wonder what's do they really meant by benefit from hearing aid? Like just simply hear loud enough to hear evironment sound or just the speech discrimination test and sentence recognization if scored whatever is correct?
RESPONSE from ALLDEAF users (thanks for your help!)
* They'd want to know how well you can discriminate speech. I was able to hear a lot of environmental sounds but I got 0 on speech discrimination.
* Yeah that's right. On the ear that I just had implanted, I got 20% speech discrimination without visual cues with my hearing aid. On my first ear, I got 0% with the hearing aid and now have 80-90% with the CI.I believe most centres look for something less than in the range of 40% - 60% speech discrimination. If you are getting good speech discrimination with hearing aids without visual cues, you will likely get turned down by insurance companies.
*Well I didn't get confirmation today because she used quick mold as temporary mold for hearing test with best aided condition but as soon she pulled mold out she was like *gasp* your ear canal is so small, hope I can fit tube through this. So she tried and it ripped it completely so she had to redo and put in box to mail to company so that mean I have to wait EVEN longer before getting her decision ugh also she seem airheaded (meaning dumb) and she is pretty pushy about not getting ci and use oticon instead I'm like "no I'm not interested I want ci so focus on that please and just do hearing test as soon as we get mold to see if I am candidate ok?" so that's it for while but she told me to go ahead schedule for surgery and if she decided to say no after we get hearing test then she'll cancel the surgery and if she said yes it'll happen so I don't know, we'll see I'm little worried if she gonna rip me off like if I heard tiny blip and she decided to go for hearing aid instead of ci you know what I mean? Hm just really hope I get it cuz I don't want hear horrible distorted sound and loud static buzzing noise *sigh*
* She is audiologist that work with my surgeon and she's only one so if I want go other audiologist I'll have to go one in baltimore, maryland that's like 3 hours from my house and my surgeon I have right now is only 15 min away. She want to do test on my good ear but I want get ci on my worse ear she doesn't want do test on that ear I don't see the point of that can't I just get hearing aid on good ear and get ci on other one sheesh
* she have my audiogram from 5 months ago by other audiologist who offer me ci when we found out I lost at least 45 decibel of hearing (you know how its different in each frequency so 45 is minimum) so she used that to program oticon and my hearing in good ear is profound plus I want ci on my worse ear (110 decibel loss) and she didn't want to test that one it doesn't makes sensesOk I emailed my surgeon's assisstant about it she told me its ok to do that because she will call and talk to my insurance company for approval right after she pick date and if they didn't approve before the surgery date just delay it and also my hearing test depends on my surgery too so guess its ok as long they get what is needed before surgery happens and she also will forward my email about why hearing aid on only right side not both so we'll see what they said. I wonder what's do they really meant by benefit from hearing aid? Like just simply hear loud enough to hear evironment sound or just the speech discrimination test and sentence recognization if scored whatever is correct?
RESPONSE from ALLDEAF users (thanks for your help!)
* They'd want to know how well you can discriminate speech. I was able to hear a lot of environmental sounds but I got 0 on speech discrimination.
* Yeah that's right. On the ear that I just had implanted, I got 20% speech discrimination without visual cues with my hearing aid. On my first ear, I got 0% with the hearing aid and now have 80-90% with the CI.I believe most centres look for something less than in the range of 40% - 60% speech discrimination. If you are getting good speech discrimination with hearing aids without visual cues, you will likely get turned down by insurance companies.
Friday, September 7, 2007
result of my CT scan is....
its NORMAL! Yay! its huge relief to see my left ear have everything in there nothing missing cuz i want to get this one implanted ofc my right ear is totally normal too :-) one more step to go to get confirmation of my candidacy then scheduled for surgery :-D and i will know on 11th of september then 2 weeks later i meet again to schedule for surgery im so excited!
Wednesday, September 5, 2007
Finally
My CT scan appointment is tomorrow, finally!!! Wish me luck hope the doctor tell me something just anything so I know whats going on or one tiny bit of good new. I been waiting too long to go by longer without knowing anything at all I hope he said something like "hi amy the result of CT scan is your cochlear look pretty healthy so see you after your hearing trial completes" somehting like that.
I will update tomorrow after the appointment to let you guys know what's up.
I will update tomorrow after the appointment to let you guys know what's up.
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